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USA TODAY on MSN · 1d

Will there be an autism registry? What we know after NIH drops plans for vast data platform

An HHS official told USA TODAY that the department is not creating an autism registry, but is pursuing the real-world data platform to support research into the causes of autism and treatments. The official did not respond to USA TODAY's clarifying questions about other disease registries or the use of privately held health data.

Health agencies "not creating an autism registry," official says, contradicting NIH director

"We are not creating an autism registry," a Department of Health and Human Services official said in a statement.

No new autism registry, HHS says, walking back NIH director’s claim

The federal health department is not creating a new registry of Americans with autism, an HHS official said Thursday.

Health News Florida4d

NIH autism study will pull from private medical records

The National Institutes of Health plans to pool information from private sources like pharmacies and smartwatches.

1d

‘Dangerous,’ ‘anti-science’, ‘dehumanizing’: CT families, officials and experts push back on RFK autism claims, registry

Autism advocates, scientists and senators called Kennedy’s assertions unscientific and alarming, with many in the autism ...

4d

NIH scraping data from private health records for autism study

The federal government plans to scrape data from a slew of private health-related records for its autism study, ranging from ...

2don MSN

U.S. autism data project sparks uproar over ethics, privacy and intent

Administration health officials walked back a plan to register people with autism after criticism from scientists, privacy ...

Fierce Healthcare5d

NIH to back RFK Jr. autism research campaign with comprehensive data resource from patients' medical records

The National Institutes of Health (NIH) will begin work on a comprehensive federal database of patient records to study ...

Advocates for people with autism have described the idea as 'terrifying'

Robert F. Kennedy Jr., the secretary of the Department of Health and Human Services, is working with the National Institutes ...

5don MSN

Trump Administration Cuts Funding for Autism Research—Even As It Aims to Find the Cause

R obert F. Kennedy Jr., the secretary of the U.S. Department of Health and Human Services (HHS), has shone a spotlight on ...

Stances on autism are reshaping the advocacy landscape

Health Secretary Robert F. Kennedy Jr.’s repeated references to the autism “ epidemic ” and suggestions that it is fueled by ...

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