The FDA is considering whether to conditionally approve a new treatment for DMD patients with mutations amenable to exon 51 ...

After two difficult years, columnist Betty's Vertin's son Max won't go back to college this fall, a decision that has her breathing easier.

Commendamide, a metabolite produced by beneficial gut bacteria that are depleted in people with DMD, protects muscle cells ...

CureDuchenne has launched a national public service announcement campaign to highlight the urgent need for new treatments for ...

There are 24 hours in a day, so there should be enough time in each one to keep from feeling caregiver burnout, says columnist.

Key milestones have been met in a clinical trial testing a one-time treatment that aims to turn off the faulty gene in FSHD, ...

Columnist Shalom Lim is grateful that his profile on the Purple Parade website highlights the importance of his disability ...

This year’s Be Their Muscle campaign has raised more than $641,000 to support the MDA Summer Camp and help advance research ...

I have been involved with the annual Parent Project Muscular Dystrophy (PPMD) conference since 2002. Back then, the conference was attended by fewer than 50 people, almost no one living with muscular ...

The CITGO Lake Charles Refinery raised more than $750,000 to support the Muscular Dystrophy Association (MDA) at its 41st annual MDA Golf Classic, an annual golf fundraiser. Since 1985, CITGO Lake ...

Health Canada has accepted and granted priority review to Italfarmaco’s application seeking the approval of oral givinostat, sold in the U.S. under the brand name Duvyzat, to treat Duchenne muscular ...

Back in March, I wrote about how living with Duchenne muscular dystrophy (DMD) has shaped my perspective on accessible design. After decades of moving through systems that were not built with people ...