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Full Live
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This is how I activate my daughter’s Vagus Nerve Stimulator (VNS) during a seizure. The device sends a signal to help interrupt the seizure activity. Per her neurologist-approved care plan, I can swipe again if it doesn’t ease after 1 minute. Her body may still shake a little, but the seizure is mostly over. Always follow your medical team’s guidance #nurse #medical #epilepsy #specialneedsmom #momsoftiktok
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After almost a year with her VNS, I’ve seen a huge decrease in seizures… but an increase in Rett episodes. The hard part is, there’s no cure or real relief for Rett episodes. So with everything her body is already dealing with, I want to ease some of the load where I can. We’re going to start weaning off some of her seizure medication and see how she does. I’ll be sharing this journey with you 💜 #rettsyndrome #disability #fyp #momsoftiktok #epilepsy
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My post-ictal symptoms after a seizure: Fight or flight Confusion Unaware of surroundings Slight aggression Fatigue What are you post-ictal symptoms after a seizure? Happy epilepsy awareness month! Go check out my Instagram for more posts! 💜 #epilepsy #fyp #chronicillness #fypシ゚viral #xyzbca
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Keep in mind, I will not show his more severe, tonic clonic seizures. He seemed so happy riding I began to video as it turned into seizure activity. As you watch, his driving style changes about 15 seconds before the little seizure happens. He then goes back to happy driving. After this video, those little seizures happened more frequently and closer together for a total of 20 minutes before his larger, tonic clonic seizure happened. I’m grateful for the smaller ones as they give us time to prep
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